About Raul

Raul was born in Barlad, Romania, on October 19th 2009. He was born with the rare genetic condition Epidermolysis Bullosa (EB), as was his sister who passed away at one month old. He lived in the hospital for four months, when he was then transferred to Tutova Clinic. I met Raul the day he arrived in Tutova, and immediately fell in love. At the time he was in very poor condition, and EB was not widely known in the area. I was in contact with doctors in the United States during my time in Romania to help find ways to improve his quality of life. Once home I began working on getting Raul a medical visa to come to the U.S. for a short time to receive more expansive testing and wound care. Raul was loved by his caretakers in Romania, but due to the lack of knowledge about EB he was isolated, and did not receive optimal care. After a lengthy, year long, process, Raul was denied a medical visa by the U.S. Embassy in Bucharest. I came home from Romania after the denial, and began the application process for his Humanitarian Parole. Thankfully, this was granted in a matter of weeks, and last July we were able to bring Raul here from Romania! We spent almost five months at Colorado Children's Hospital receiving care for Raul from their EB specialists, and are now home in Boston. While there is no cure for EB, Raul has improved greatly with a feeding tube for nutrition and extensive wound care! We are currently working through some of his developmental delays with Early Intervention (PT, OT, Speech), trying to keep him free from major infections due to his open wounds, and overall just letting him live a normal toddler life!