About Raul

Raul was born in Barlad, Romania, on October 19th 2009. He was born with the rare genetic condition Epidermolysis Bullosa (EB), as was his sister who passed away at one month old. He lived in the hospital for four months, when he was then transferred to Tutova Clinic. I met Raul the day he arrived in Tutova, and immediately fell in love. At the time he was in very poor condition, and EB was not widely known in the area. I was in contact with doctors in the United States during my time in Romania to help find ways to improve his quality of life. Once home I began working on getting Raul a medical visa to come to the U.S. for a short time to receive more expansive testing and wound care. Raul was loved by his caretakers in Romania, but due to the lack of knowledge about EB he was isolated, and did not receive optimal care. After a lengthy, year process, Raul was denied a medical visa by the U.S. Embassy in Bucharest. I came home from Romania after the denial, and began the application process for his Humanitarian Parole. Thankfully, this was granted in a matter of weeks, and in July 2011, we were able to bring Raul here from Romania! We spent almost five months at Colorado Children's Hospital receiving care for Raul from their EB specialists, and are now home in Boston. Raul was granted permanent residency in December 2013. While there is no cure for EB, Raul's quality of life has improved greatly with a feeding tube for nutrition and extensive wound care! Raul is currently in his third year of pre-school, and next year will attend Kindergarten! He has come so far developmentally that he no longer requires a substantially separate classroom placement, and has been moved to an integrated pre-school program!