We went to Rockport this weekend and had a Valentine's Day party for Raul! He had missed going to school on Valentine's Day because there was a delay due to snow, and he only goes in the morning. He was VERY excited about his party! We put up decorations, and he got heart glasses and a red necklace. We were supposed to get a huge snow storm, but it ended up mostly just being super windy, and we only got about two inches of snow. It was enough for us to go out with Raul's new sled, though! Raul loved sledding, and went out twice, but each just for a few minutes because it was so cold. Raul even sat with us in a restaurant when we went out to lunch! We haven't even tried this in a long time as before he would just scream, but he did great this time (with a new toy!).
Both nights were really hard, tough. He was up almost the entire night both nights, with lots of screaming and crying. It was hard to tell what was wrong, but it seemed to be at least partially due to pain and itching. Raul's legs have been getting worse, and we cannot find any local doctors willing to try artificial grafts for them. I am hoping the doctor we see in March will be willing! We are also trying to find a pain medication that works for him, as all the narcotics we have tried just make him super itchy and angry/fussy.