Saturday, May 25, 2013

ER Visit

The other day we took Raul to the pediatrician as he had been running a higher fever, his skin was bad, and he had vomited the day before irritating his upper airway and esophagus. After waiting a while, they sent us down to the ER, as they weren't sure exactly what to do. We had to wait a while, and poor Raul was so itchy as he needed his midday medicine. We finally got a room, but pediatrics was full so we got put in a staging room. That meant no TV or anything, and child life doesn't come in until later in the evening so they were only able to bring a few little things for him. He got a chest x-ray, which was normal, and then we continued to wait. They came in and said they were thinking of admitting him, but decided after seeing him that we could go home as long as I was comfortable with that. They put him back on two antibiotics, and then it took over two more hours to be discharged! Raul's esophageal issues are just getting worse though. He isn't swallowing any of his saliva, and frequently chokes on the saliva and mucous. We may be heading for another dilatation, but I am still hoping it may just be damaged from the vomiting and heal!

Itching

Raul loves bubbles!

Sunday, May 19, 2013

EMS Day

Today was EMS Day in Rockport! Raul has a really rough night. He was up almost the entire night screaming and miserable. He seemed to be in a lot of pain, but does not have infections right now, so I am not sure why it was so much worse. So because of that we didn't leave in the morning as planned. On the way home we stopped at EMS Day in Rockport so Raul could see all the vehicles! That helped his mood, and he enjoyed seeing everything. He got a hat, and he hugged it all the way home, even in his sleep!









Saturday, May 18, 2013

Spring in Rockport

This is our first weekend up in Rockport this Spring. Raul didn't sleep more than a couple hours last night. It seemed to be a combination of going to bed a bit late and being in a new place. He was still happy this morning, though, and the weather was nice. We decided to walk to the farm at the end of our street to buy vegetables for dinner and ask about their animals. They were very nice, and told us where to find the horses and cows, and that we were welcome to walk around when they were open. They had a ton of animals! We saw some of their horses first, and they told us about the alpha horse and another large horse. They also had a blind horse that was very sweet. Then we wandered further back and found the cows in their pen. They are meat cows, and are in a pen during the winter, but are going out to pasture soon for the summer. One of the farmers came back in a tractor and we talked to him for a few minutes. All the animals always like Raul! Then we came home and played outside for a while before taking a nice long nap!















Wednesday, May 8, 2013

First Field Trip

Raul's class went on a farm field trip today, and my mom and I joined them! Raul has been to this farm before, so he was a bit confused to see his school friends there! It was pretty quick, but we looked at the animals and took a hay ride. It was fun to see the other kids in his class, too!




Monday, May 6, 2013

Iron Infusion

Raul had his second iron infusion of this set today. He had a hefty dose of ativan before we left home for IV placement, so he was very out of it. He actually kept tipping over, BUT he didn't make a peep during the IV placement, so it was worth it! We finally got him to lie down for a while so he would stop tipping over! This time the IV stayed in, so he got his full dose. The labs from today showed that the partial infusion he had two months ago didn't make any difference with his anemia. His numbers were all either exactly the same or slightly worse. Hopefully this one will bring them up! He may need one or two more before he crosses over the threshold to not being anemic.




Sunday, April 28, 2013

22nd Birthday

We enjoyed a family breakfast and dinner for my birthday! Raul has been pretty uncomfortable the past few days with all the antibiotics he is taking, so his belly was bothering him tonight at dinner.




Tuesday, April 23, 2013

More Pool

Raul wasn't feeling too well this morning. We went out to do a few errands and saw a vintage car museum, so we decided to go in. We thought Raul would love it, but he was pretty out of it. When we got home he took an early nap. His nap ended up being about four hours, but he seemed to be feeling a bit getter after. Then he and my mom took a little swim next door. Raul mostly wanted to play on the step today, and had fun dumping buckets of water on himself. After his bandage change we went down to the dock to look for boats, but didn't see any. We head home tomorrow.